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Home Health Care Management & Practice, Vol. 18, No. 4, 306-314 (2006)
DOI: 10.1177/1084822305284749

Closing the Home Care Case: Home Health Aides’ Perspectives on Family Caregiving

Alene Hokenstad, MSSA

Division of Policy Analysis at the United Hospital Fund

Andrea Y. Hart, BA

United Hospital Fund’s Division of Education and Program Initiatives

David A. Gould, PhD

United Hospital Fund

Deborah Halper, MPH, MSUP

Division of Education and Program Initiatives at the United Hospital Fund

Carol Levine, MA

Families and Health Care Project at the United Hospital Fund

A series of focus groups with home health aides experienced in caring for patients with stroke or brain injury provided insight into how they experience their work and their relationship to family caregivers. Two issues merit more attention. First, aides reported that they do not always have all of the information, including diagnosis or previous history, which they need to provide appropriate care. Second, aides said they often receive little advance notice about when the case would close. Abrupt transitions are hard for aides, families, and patients who have often built up a good relationship. Agencies should establish better lines of communication for relevant information, correct misunderstandings about privacy rules, provide additional guidance about how to respond to caregivers’ questions, and provide adequate time for closure.

Key Words: home health aides • family caregivers • care • clinicians • workforce


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