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Home Health Care Management & Practice
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Closing the Home Care Case: Clinicians’ Perspectives on Family Caregiving

Alene Hokenstad, MSSA

United Hospital Fund

Andrea Y. Hart, BA

United Hospital Fund’s Division of Education and Program Initiatives

David A. Gould, PhD

United Hospital Fund

Deborah Halper, MPH, MSUP

Division of Education and Program Initiatives at the United Hospital Fund

Carol Levine, MA

United Hospital Fund

Focus groups revealed five inherent conflicts that affect home health care clinicians’ interactions with family caregivers: (a) Services often depend on caregivers’ participation, but the home care system does not give them formal status or consideration; (b) clinicians must balance competing priorities within a short time frame; (c) clinicians recognize that families have unmet emotional and training needs, but benefits are not designed to address them; (d) clinicians face conflicting professional roles as patient advocates and service gatekeepers; and (e) agencies reserve social work services, a key to caregiver access to community resources, for their most difficult cases. Building a more rational system will involve raising awareness about the system’s limitation, providing more training and support for caregivers and the professionals who interact with them, and aligning financial incentives with the realities of what it takes to prepare caregivers to care for patients with complex needs when formal services end.

Key Words: family caregivers • home health care • Medicare • stroke • clinicians

Home Health Care Management & Practice, Vol. 17, No. 5, 388-397 (2005)
DOI: 10.1177/1084822305275504


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