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Home Health Care Management & Practice
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The Caregivers’ Story: Home Caregiving for Persons with Dementia

Ann Wilde Kelly, PhD, RN

Mayo Clinic Scottsdale, Arizona

Kathleen Coen Buckwalter, PhD, RN, FAAN

University of Iowa; University of Iowa’s Center on Aging; National Advisory Council for the National Institute of Nursing Research

Geri Hall, PhD, RN, FAAN

University of Iowa College of Nursing

Amy L. Weaver, MS

Mayo Clinic in Rochester, Minnesota

Howard K. Butcher, PhD, RN

University of Iowa College of Nursing

This study identified the salient issues of caregiving for family members of persons with dementia using computer-assisted content analysis followed by factor analysis. Differences in responses between caregivers in two treatment groups were also noted. Caregivers (N = 226) were interviewed on three occasions over 12 months. They consistently identified the following themes of caregiving in order of significance: (a) making meaning of the experience; (b) defining the caregiver role; (c) identifying specific caregiving strategies; (d) dealing with change, unpredictability, and vulnerability; (e) evaluating past and future decisions and quality of care; and (f) finding help and support. This representation of the caregiving experience is useful to home care nurses by providing a framework to address issues most important to caregivers and upon which therapeutic interventions can be developed.

Key Words: dementia caregivers • home care nursing • Progressively Lowered Stress Threshold Model • themes of caregiving

Home Health Care Management & Practice, Vol. 14, No. 2, 99-109 (2002)
DOI: 10.1177/1084822302014002004


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