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The Caregivers Story: Home Caregiving for Persons with DementiaMayo Clinic Scottsdale, Arizona
University of Iowa; University of Iowas Center on Aging; National Advisory Council for the National Institute of Nursing Research
University of Iowa College of Nursing
Mayo Clinic in Rochester, Minnesota
University of Iowa College of Nursing This study identified the salient issues of caregiving for family members of persons with dementia using computer-assisted content analysis followed by factor analysis. Differences in responses between caregivers in two treatment groups were also noted. Caregivers (N = 226) were interviewed on three occasions over 12 months. They consistently identified the following themes of caregiving in order of significance: (a) making meaning of the experience; (b) defining the caregiver role; (c) identifying specific caregiving strategies; (d) dealing with change, unpredictability, and vulnerability; (e) evaluating past and future decisions and quality of care; and (f) finding help and support. This representation of the caregiving experience is useful to home care nurses by providing a framework to address issues most important to caregivers and upon which therapeutic interventions can be developed.
Key Words: dementia caregivers home care nursing Progressively Lowered Stress Threshold Model themes of caregiving
Home Health Care Management & Practice, Vol. 14, No. 2,
99-109 (2002) |
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